Voluntary health organizations active in the prevention or treatment of illnesses or conditions that are hereditary and passed from parent to offspring. Use this code for organizations that focus on a wide variety of genetic disorders or on genetic disorders not specified below.
Key words: Achronplasia; Alagille Syndrome; Albinism; Amaurotic Familial Idiocy; Bardet-Biedl Syndrome; Birth Defects; Cerebral Palsy; Charcot-Marie Disease; Charcot-Marie-Tooth Disease; Chromosome Disorders; Clubfoot; Coffin-Lowrey Syndrome; Congenital Defects; Cri-du-Chat Syndrome; Crying Cat Syndrome; Cryptorchidism; Cystic Fibrosis; Cytochrome-c Oxidase Deficiency; Dandy-Walker Syndrome; De Lange Syndrome; Developmental Coordination Disorder; Factor X Deficiency; Fetal Alcohol Syndrome; Fragile X Syndrome; Friedreich Ataxia; Genetic Diseases; Hemophilia; Hereditary Diseases; Huntingtons Disease; Jervell-Lange Nielsen Syndrome; Kartagener Syndrome; Klinefelter Syndrome; Laurence-Moon Syndrome; Leigh Disease; Lesch-Nyhan Syndrome; Littles Disease; Lynch Syndrome; March of Dimes; Marfan Syndrome; Martin-Bell Syndrome; Mental Retardation; Motor Skills Disorder; Neurofibromatosis; Oral-Facial Clefts; Phenylketonuria; PKU; Porphyria; Prader-Willi Syndrome; Pseudoxanthoma Elasticum; Pyruvate Carboxylase Deficiency Disease; Pyruvate Dehydrogenase Complex Deficiency Disease; Rett Disorder; Rett Syndrome; Retts Disorder; Retts Syndrome; Rett's Disorder; Rett's Syndrome; Rh Disease; Romano-Ward Syndrome; Rubinstein-Taybi Syndrome; Sickle Cell; Spina Bifida; Sudden Infant Death; Tay Sachs; Testicular Feminization Syndrome; Thalassemia; Turner Syndrome; Turners Syndrome; WAGR Syndrome; Werner Syndrome; Williams Syndrome; Xeroderma Pigmentosum
Scope notes: Voluntary Health Agencies provide patient assistance and family support, community services, public and professional education, medical research support, and health-related advocacy.
USE E86 Patient & Family Support for disease-specific organizations that provide only patient & family support.
USE N20 Camps for organizations that provide camping opportunities targeting ill children and youth.
USE the P80 Services to Promote the Independence of Specific Populations for organizations that provide social services for patients and family of people with health conditions.